The National ABI Education and Learning Syndicate (NABLES) held its second meeting with the Department for Education on 30th January 2019 to discuss how we can work with the DfE to raise awareness and recognition of Acquired Brain Injury in schools. The DfE suggested a range of communication channels for information and presentation which NABLES will follow up over the coming months.
Communication is key. This was the conclusion of a meeting held on Friday, 1st February at Southborough Group Scout hut for the West Kent Different Strokes local peer support group. The group was joined by MP Greg Clark who listened intently to the survivors and supporters who spoke about their first-hand experiences of Stroke Service provision and rehabilitation support at home. Guest speaker, Kevin Humphries from tmactive, Angel Centre, Tonbridge explained how to access adapted equipment or classes to maintain health after a medical emergency.
The latest episode of BBC Hospital depicts the issues surrounding neurorehabilitation at The Walton Centre
Tom looks physically well. He has been medically fit for two months but he too has had to remain at The Walton Centre. The 18-year-old was the driver in a car accident. Such was the force of the crash he was thrown out of the rear window sustaining significant head injuries. Tom now struggles to remember even the simplest things but doesn’t think there is anything wrong with him anymore and repeatedly tries to leave. The Walton’s consultants say they have done all they medically can and Tom now urgently needs the expertise of rehabilitation specialists if he is to recover further. There are only nine suitable cognitive rehabilitation beds available across the whole of Liverpool’s NHS system so The Walton has no choice but to turn to private rehabilitation services and seek funding for a place for Tom. It could take many more weeks to organise while Tom remains in the acute ward at The Walton.
Chloe Hayward was pleased to be invited to speak with Ministers for Justice, Rory Stewart and Edward Argar at Westminster today alongside the Chair of the All-Party Parliamentary Group for Acquired Brain Injury, Chris Bryant, MP, Dr Ivan Pitman from The Disabilities Trust and Professor Nathan Hughes from the University of Sheffield. The meeting followed questions raised by Chris Bryant in the House of Commons concerning the high prevalence of brain injury in prisons and the need for better screening and training.
On 12th November UKABIF met with Minister for the Cabinet, David Lidington to request a ministerial level meeting to discuss Acquired Brain Injury. We are really pleased that he agreed and has already set the wheels in motion to make this happen. Our warmest thanks to APPG/ABI Chair, Chris Bryant for tirelessly working on behalf of all those with brain injury in Parliament. Big thanks to Professor Diane Playford, Dr Emily Bennett and Dr Ivan Pitman for attending the meeting and providing invaluable support based on clinical and academic experience
#braininjury #acquiredbraininjury #rehabilitation #APPG #ChrisBryant #DavidLidington #Whitehall #Government #UKABIF #TimeForChange
Verity Fisher, Physiotherapy Manager at the National Star College in Ullenwood near Cheltenham, is the recipient of this year’s United Kingdom Acquired Brain Injury Forum (UKABIF) Stephen McAleese Award for Inspiration. The Award was announced by John and Susan McAleese at UKABIF’s 10th Annual and 20th Anniversary Conference which took place this month in London.
Dr Andrew Bateman, UKABIF Chair, welcomed delegates to the organisation’s 10th Annual and 20th Anniversary Conference, held today at the Royal Society of Medicine in London.
Colonel Alan Mistlin, Chair of the Clinical Reference Group for Rehabilitation and Disability opened the meeting by outlining the development and future of specialised rehabilitation. “The current services are probably not what we would set up now, but there’s lots of work in progress” concluded Alan. The role of the updated Rehabilitation Prescription (RP) was discussed by Hannah Farrell, University Hospitals Birmingham NHS Foundation Trust. Hannah said: “The RP is not just a tick box exercise. It should be used for every patient with rehabilitation needs and this is a major challenge going forwards”.
Is Anna Ok? is an innovative piece that explores the aftermath of trauma, including the ways relationships must change and adapt. Despite its heavy subject matter, the piece is hopeful and poignant, focusing first and foremost on the bond between its twin protagonists, and never letting the user abandon hope about their situation.
On October 16th, Dr Mohamed Sakel (Chair) launched the Kent & Medway Brain & Spinal cord Rehabilitation Initiative in the House of Commons. Rosie Duffield (MP, Canterbury) welcomed and opened the meeting and invited Dr Sakel to introduce the agenda and outline the key objectives of this initial gathering.
“Acquired Brain Injury is an invisible epidemic, and we need to ensure that the neurorehabilitation services required following a brain injury are ‘fit for purpose’ throughout the UK” said Chris Bryant MP and Chair of the All-Party Parliamentary Group on Acquired Brain Injury (APPG on ABI) speaking today in London at the launch of a report ‘Time for Change: Acquired Brain Injury and Neurorehabilitation’.
Brain Injury Survivors, charities, clinicians, campaigners, academics and MPs attended the launch of the report, where a short film was played showing the cause and effect of acquired brain injuries.
There are more than 1.3 million people living with the effects of brain injury at a cost to the UK economy of £15 billion per annum or 10% of the National Health Service (NHS) budget. The excellent advances in emergency and acute medicine mean that many more children, young people and adults now survive with an ABI, however, many of these individuals require early and continued access to neurorehabilitation to optimise all aspects of their physical, cognitive, behavioural and psychosocial recovery, and to maximise their long-term potential.
Neurorehabilitation is one of the most cost-effective interventions available on the NHS, but there are large variations in the provision and access to neurorehabilitation services across the UK.
The report outlines the critical role of neurorehabilitation in the ABI care pathway, and the need for Rehabilitation Prescriptions for all brain injury survivors following discharge from acute care so they know what neurorehabilitation they need. The report reviews the implications for children and young people with ABI when most of their neurorehabilitation takes place in the education system. The high incidence of ABI amongst offenders is discussed, as is the impact of neurorehabilitation on behavioural change and reoffending. The current issues in sport-related concussion are outlined as well as the need for an improved welfare system that is easily accessible.
The report summarises the key issues and makes several recommendations. Chris Bryant concluded: “ABI impacts on many government departments so a task force is required to address the issues and recommendations as a matter of urgency. The APPG on ABI intends to unite all the departments involved in order to drive change for brain injury survivors”.
Copies of the report can be obtained from: www.ukabif.org.uk/campaigns/appg-report