Charities, organisations, professionals and individuals concerned with how the Mental Capacity Act (MCA) is being applied to individuals affected by acquired brain injury (ABI) have united to submit an agreed letter to the Ministry of Justice who are currently reviewing the Act’s Code of Practice. Since the House of Lords review of the MCA was published, increasing concerns have been raised about the how the Act is applied to people with an ABI, in particular the risks associated with a lack of knowledge of the condition by professionals undertaking Capacity and Best Interests assessments has been identified. The signatories of the joint-submission represent a very broad range of UK charity and professional groups, uniting to draw attention to the problems experienced by families affected by ABI and this is a unique collaboration. The submitted letter is attached below , please feel free to distribute this and to use the content if you are experiencing difficulties with the application of the MCA.
A new Rehabilitation Prescription (RP2019), the tool that documents the rehabilitation needs of the individual with Acquired Brain Injury (ABI), is now available, with versions available for adults and children.
Commenting on RP2019, Professor Chris Moran, National Clinical Director for Trauma to NHS England, and Professor of Orthopaedic Trauma Surgery at Nottingham University Hospital said: “Neurorehabilitation is a key component of the major trauma network; an essential part of good trauma care and good patient outcomes. Rehabilitation needs should be assessed shortly after a patient is admitted to the major trauma centre, delivered during the inpatient phase, and continued in a trauma unit or in the local community. This new RP details the neurorehabilitation needs of both children and adults, and in order to maintain the continuity of rehabilitation, a copy should be given to both the patient and/or family as well as their GP.”
The Disabilities Trust, a leading national charity, in collaboration with Royal Holloway, University of London, announced the results of the first study of its kind into brain injury in female offenders. The results of the study in which 64% of female offenders reported a history indicative of a brain injury, demonstrates the need for brain injury screening as a routine part of the assessment on entry to the probation services or prison, and for a support pathway that is delivered by Linkworkers.
The National ABI Education and Learning Syndicate (NABLES) held its second meeting with the Department for Education on 30th January 2019 to discuss how we can work with the DfE to raise awareness and recognition of Acquired Brain Injury in schools. The DfE suggested a range of communication channels for information and presentation which NABLES will follow up over the coming months.
Communication is key. This was the conclusion of a meeting held on Friday, 1st February at Southborough Group Scout hut for the West Kent Different Strokes local peer support group. The group was joined by MP Greg Clark who listened intently to the survivors and supporters who spoke about their first-hand experiences of Stroke Service provision and rehabilitation support at home. Guest speaker, Kevin Humphries from tmactive, Angel Centre, Tonbridge explained how to access adapted equipment or classes to maintain health after a medical emergency.
The latest episode of BBC Hospital depicts the issues surrounding neurorehabilitation at The Walton Centre
Tom looks physically well. He has been medically fit for two months but he too has had to remain at The Walton Centre. The 18-year-old was the driver in a car accident. Such was the force of the crash he was thrown out of the rear window sustaining significant head injuries. Tom now struggles to remember even the simplest things but doesn’t think there is anything wrong with him anymore and repeatedly tries to leave. The Walton’s consultants say they have done all they medically can and Tom now urgently needs the expertise of rehabilitation specialists if he is to recover further. There are only nine suitable cognitive rehabilitation beds available across the whole of Liverpool’s NHS system so The Walton has no choice but to turn to private rehabilitation services and seek funding for a place for Tom. It could take many more weeks to organise while Tom remains in the acute ward at The Walton.
Chloe Hayward was pleased to be invited to speak with Ministers for Justice, Rory Stewart and Edward Argar at Westminster today alongside the Chair of the All-Party Parliamentary Group for Acquired Brain Injury, Chris Bryant, MP, Dr Ivan Pitman from The Disabilities Trust and Professor Nathan Hughes from the University of Sheffield. The meeting followed questions raised by Chris Bryant in the House of Commons concerning the high prevalence of brain injury in prisons and the need for better screening and training.
On 12th November UKABIF met with Minister for the Cabinet, David Lidington to request a ministerial level meeting to discuss Acquired Brain Injury. We are really pleased that he agreed and has already set the wheels in motion to make this happen. Our warmest thanks to APPG/ABI Chair, Chris Bryant for tirelessly working on behalf of all those with brain injury in Parliament. Big thanks to Professor Diane Playford, Dr Emily Bennett and Dr Ivan Pitman for attending the meeting and providing invaluable support based on clinical and academic experience
#braininjury #acquiredbraininjury #rehabilitation #APPG #ChrisBryant #DavidLidington #Whitehall #Government #UKABIF #TimeForChange
Verity Fisher, Physiotherapy Manager at the National Star College in Ullenwood near Cheltenham, is the recipient of this year’s United Kingdom Acquired Brain Injury Forum (UKABIF) Stephen McAleese Award for Inspiration. The Award was announced by John and Susan McAleese at UKABIF’s 10th Annual and 20th Anniversary Conference which took place this month in London.