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Backbench debate on Acquired Brain Injury takes place in Parliament

A second backbench debate on acquired brain injury took place in parliament on Thursday 9th May 2019. The motion was raised by Chris Bryant, MP and Sir John Hayes, MP. 16 MPs took part speaking on behalf of their constituents or discussing their own personal connection with acquired brain injury. The government response was presented by the Under Secretary of State for Health and Social Care, Seema Kennedy.

Chris Bryant, Chair of the All Party Parliamentary Group for Acquired Brain Injury has championed raising awareness of ABI in parliament. He spoke first and was able to pinpoint many of the problems facing people with brain injury from issues with benefits to the need for neurorehabilitation.

Sir John Hayes is himself a brain injury survivor having sustained serious injuries in a road traffic accident in his twenties. John very eloquently spoke of the subtle changes which can take place which result in a world of difficulties for the survivor and their families.

Liz Twist is also a member of the APPG for ABI and a strong advocate for better support for children with acquired brain injuries. Liz outlined the need for better awareness in schools and special services for children with brain injuries.

Chloe Hayward of UKABIF who jointly provides the secretariat for the All-Party Parliamentary Group and has been working with Chris Bryant and others to push for better access to neurorehabilitation and recognition of acquired brain injury said,

‘It was really heartening to see that many of our key issues were raised in parliament today. Neurorehabilitation must be accessible to everyone with an acquired brain injury and follow on support post discharge is essential to prevent people and their families from slipping into crisis.’

Chloe thanked other charities for their support in briefing MPs about the event.

You can read a full transcript of the debate here: https://hansard.parliament.uk/Commons/2019-05-09/debates/FBF9F722-1D93-4721-B8C9-EF46E782F073/AcquiredBrainInjury

Second backbench debate on acquired brain injury!

UKABIF are delighted that a second backbench debate on acquired brain injury will take place in parliament on Thursday 9th May. The debate will start at around 11.30 am and will give MPs the chance to speak on behalf of their constituents who have suffered from an acquired brain injury or work in this area.

MPs Chris Bryant and John Hayes will lead the speeches and will refer to the APPG for Acquired Brain Injury’s Report and Recommendations. They will state support for the conclusions of the report and urge the government to coordinate responses across the departments so that those who have sustained brain injuries are guaranteed full neuro-rehabilitation as needed.

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Nominate UKABIF for Ecclesiastical Award

UKABIF is a charity which is registered in England and Wales under charity number 1128284. We raise awareness of acquired brain injury – it’s effects are devastating, but is little understood. We are urging our members and wider contacts to nominate us for the Ecclesiastical Movement for Good Awards Programme. If we receive enough nominations we would receive an award of £1000.

Please take a moment to nominate UKABIF and share with your colleagues – thank you!

Brain Injury Organisations Unite in Response to the Mental Capacity Act Code of Practice

Charities, organisations, professionals and individuals concerned with how the Mental Capacity Act (MCA) is being applied to individuals affected by acquired brain injury (ABI) have united to submit an agreed letter to the Ministry of Justice who are currently reviewing the Act’s Code of Practice. Since the House of Lords review of the MCA was published, increasing concerns have been raised about the how the Act is applied to people with an ABI, in particular the risks associated with a lack of knowledge of the condition by professionals undertaking Capacity and Best Interests assessments has been identified. The signatories of the joint-submission represent a very broad range of UK charity and professional groups, uniting to draw attention to the problems experienced by families affected by ABI and this is a unique collaboration. The submitted letter is attached below , please feel free to distribute this and to use the content if you are experiencing difficulties with the application of the MCA.

Acquired Brain Injury Collaboration Letter Submission

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A new Rehabilitation Prescription (RP2019), the tool that documents the rehabilitation needs of the individual with Acquired Brain Injury (ABI), is now available, with versions available for adults and children.

Commenting on RP2019, Professor Chris Moran, National Clinical Director for Trauma to NHS England, and Professor of Orthopaedic Trauma Surgery at Nottingham University Hospital said: “Neurorehabilitation is a key component of the major trauma network; an essential part of good trauma care and good patient outcomes. Rehabilitation needs should be assessed shortly after a patient is admitted to the major trauma centre, delivered during the inpatient phase, and continued in a trauma unit or in the local community. This new RP details the neurorehabilitation needs of both children and adults, and in order to maintain the continuity of rehabilitation, a copy should be given to both the patient and/or family as well as their GP.”

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The Disabilities Trust Launches New Report: Making the Link: Female Offending and Brain Injury

The Disabilities Trust, a leading national charity, in collaboration with Royal Holloway, University of London, announced the results of the first study of its kind into brain injury in female offenders. The results of the study in which 64% of female offenders reported a history indicative of a brain injury, demonstrates the need for brain injury screening as a routine part of the assessment on entry to the probation services or prison, and for a support pathway that is delivered by Linkworkers.

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NABLES strengthens links with the Department for Education

The National ABI Education and Learning Syndicate (NABLES) held its second meeting with the Department for Education on 30th January 2019 to discuss how we can work with the DfE to raise awareness and recognition of Acquired Brain Injury in schools. The DfE suggested a range of communication channels for information and presentation which NABLES will follow up over the coming months.

West Kent Different Strokes support group meet MP Greg Clarke

Communication is key.  This was the conclusion of a meeting held on Friday, 1st February at Southborough Group Scout hut for the West Kent Different Strokes local peer support group.  The group was joined by MP Greg Clark who listened intently to the survivors and supporters who spoke about their first-hand experiences of Stroke Service provision and rehabilitation support at home.  Guest speaker, Kevin Humphries from tmactive, Angel Centre, Tonbridge explained how to access adapted equipment or classes to maintain health after a medical emergency.

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The latest episode of BBC Hospital depicts the issues surrounding neurorehabilitation at The Walton Centre

The latest episode of BBC Hospital depicts the issues surrounding neurorehabilitation at The Walton Centre

Tom looks physically well. He has been medically fit for two months but he too has had to remain at The Walton Centre. The 18-year-old was the driver in a car accident. Such was the force of the crash he was thrown out of the rear window sustaining significant head injuries. Tom now struggles to remember even the simplest things but doesn’t think there is anything wrong with him anymore and repeatedly tries to leave. The Walton’s consultants say they have done all they medically can and Tom now urgently needs the expertise of rehabilitation specialists if he is to recover further. There are only nine suitable cognitive rehabilitation beds available across the whole of Liverpool’s NHS system so The Walton has no choice but to turn to private rehabilitation services and seek funding for a place for Tom. It could take many more weeks to organise while Tom remains in the acute ward at The Walton.

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UKABIF welcomes enquiries from the media. We are able to provide information about all aspects of acquired brain injury as well as experts in the field to talk about topical issues. Please call 0845 6080788 or 07903887655.